Home Web Links Disease Specific Patient Groups and Organizations
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1 Ataxia Telangiectasia (A-T) Children's Project
A non-profit organization dedicated to accelerating the research toward a cure for Ataxia Telangiectasia. They also provide educational literature on AT
2 Chronic Granulomatous Disease (CGD) Home Page
A web site designed to provide information about Chronic Granulomatous Disease. Periodic chat sessions are held for members of the group.
3 Hereditary Angioedema Association
An organization dedicated to providing education about Hereditary Angioedema or C1 Inhibitor Deficiency Disorder.
4 Severe Combined Immunodeficiency (SCID)
A web site designed to provide information about Severe Combined Immunodeficiency Disease. The site includes an email listserve for parents to talk with others about this disorder.

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This site was last modified on:Thursday 07 December 2017

WIPW 2013

IPIC 2013